Monday, 10 February 2014

Unknown Illnesses: Hidradenitis Suppurativa (HS)

Back in 2012 I wrote a post about a rare illness, Epidermolysis Bullosa. Click here to read it if you want.

I was meant to write this post a while ago and feel guilty for not doing so.

Hidradenitis Suppurativa is a chronic and painful illness that gets worse over time. It involves the apocrine sweat glands in the body which get blocked and result in abscesses. Usually, the infection is not caused by bacteria but the most common form of treatment is antibiotics which is inefficient at treating the illness although it does prevent secondary infections.

Hidradenitis Suppurativa usually starts in adolescence and tends to last until the sufferer dies. In rare cases, the illness may disappear later in life or in menopause for women although it can get worse after menopause. The illness can also start in menopause.

There is no cure for the illness and the treatments are mostly ineffective. Most sufferers are ashamed of their illness because they feel that they're dirty and so they don't seek medical treatment despite Hidradenitis Suppurativa being harder to treat the more it progresses. The illness is not caused by germs and is not linked to hygiene. Also, it is not contagious.

There are varying numbers on how many people have this because most people don't talk about it but it's out there. Very little research has been carried out and thus, it's called an orphan disease.

The illness is seriously misunderstood. It is not caused by germs and you can't catch it from a sufferer unless they pass their genes onto you. Thus, it can run in families but not everyone will be affected.

There is a British charity for the illness called the Hidradenitis Suppurativa Trust. Click here to visit their site.

To learn more about Hidradenitis Suppurativa, click here. There are some images on this site that are not pleasant so click with caution.

If you can pass on this post, please do. Raising awareness of rare illnesses is the first step towards finding treatments and cures.

As I have the illness myself (but am in remission thank god), if you have any questions then feel free to ask in the comments section below.

Thanks for reading.

Kamille :D

8 comments:

  1. What a tragic disease! It's a shame that more people aren't aware of it. So glad to hear you're in remission, though!

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  2. I know you have this condition. I'm glad it's in remission. Hope your law studies are going well if you're still in university. If not, I assume you're practicing law.

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  3. That sounds horrible. I hope doctors can find a way to help ease or even cure the progression of the disease.

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    1. It does sound horrible. I agree. It's why it's so hard talking about it.

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  4. I'd never heard of this. It does sound horrible, so I'm very glad to hear it's in remission!

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    1. Thanks! It's okay. i didn't know about it until I had had it for 8 years or something.

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