As a sufferer of a relatively unknown illness, I thought I'd do some posts on unknown illnesses just to raise some awareness of them.
I found out about Epidermolysis Bullosa from an article on the Daily Mail. Click here to read it. I felt to sorry for the poor baby girl. I hope she has the strength to live with such an awful illness. Bless her heart.
This is an inherited condition where the proteins between the layers of skin haven't formed and so trauma to the skin results in blisters. The chronic damage to the skin can increase the chances of skin cancer.
There is no cure for this illness.
I used to think that my illness was the worst. And in some ways, I think it's the worst. But this is also up there on the list of the worst illnesses you wish you never have.
There is a charity in the UK called DEBRA (click here to go to their website). You can go on their website to learn more about it.
If you ever get the chance to inform people of an orphan illness like Epidermolysis Bullosa, please do. The only way we can raise awareness of illnesses is if we learn about them and spread the word. We need to find cures for illnesses and they'll never come if nobody knows about the illness. And I'm being honest when I say this, but even my doctors are ignorant of my disease and that does not fill me with hope. The medical community saddens me sometimes.
Hope you're all okay.